Twelve Years
August 23rd 2013. A date that sticks in the mind. The date that the results of various tests came in and led to an initial diagnosis of Multiple Sclerosis. It took another year to confirm the form. All of this…
Category Living With Multiple Sclerosis
My personal reflections on Multiple Sclerosis. Good days and bad days, preferably the former.
One sclerosis can never be enough, after all…..
Living With MS: The Cognitive Sh*t
The physical challenges of Multiple Sclerosis are noticeable enough but the cognitive issues are difficult to deal with and explain because they are invisible. Everyone can see a limp or a tremble but no one can see that your brain…
World MS Day: Looking Back, Looking Forward
May 30th was World MS Day. While not exactly a cause for celebration, it’s a meaningful day for raising awareness. To be honest, though, most of the coverage I’ve seen has been on websites and blogs for people who already…
Ocrevus Infusions: So What Actually Happens?
I mention Ocrevus quite a lot in this blog. That’s understandable. It’s the first treatment I have ever received for Multiple Sclerosis and, if it does what it should and slow lesion growth, that will be something! A real win!…
A Day of Nothing
I wrote this on a day when I could not do much. A day of nothing. The kind of days that are part of conditions such as MS but seldom get mentioned much because they are not inspirational. Or interesting…
A Life of Constant Change
It has been difficult to write recently. There are actually some pretty nice reasons for that although one is not that nice. Dealing with the constant change through Multiple Sclerosis. Changes in my mind, my body, my nervous system. Well,…
The Isolation of Others
I am a member of various Multiple Sclerosis associations, some of which have on-line forums where people with MS post about their experiences. It certainly brings you back to earth. As a new member of one of these forums I…
Numb
New experiences, new symptoms, are a constant with Multiple Sclerosis. Sometimes they are only inconvenient, other times they can be a big concern. Mostly, they are somewhere between the two. I will occasionally post about them here. Keep them in…
Being Human
So the idea was to get away from MS a bit. In the blog at least. The problem is that it is difficult to make such a clean cut with something that is there every day. I don’t want it…
The Laying Around and Waiting Game
I would really, really love to write something incredibly exciting about the last couple of weeks. I really would! The scaling of another mountain by bike or an amazing visit to a fantastic city. It is difficult to write in…