My personal reflections on Multiple Sclerosis. Good days and bad days, preferably the former.
One sclerosis can never be enough, after all…..
Third draft of this post. Chucked out the first two, surprisingly hard work.
Should've been simple: just the results of some neuropsychological tests. Turns out nothing about MS is ever quite that simple.
Wrote about what the results actually mean day to day, and some thoughts on where things go from here.
Mont Ventoux was such a high, literally and emotionally. Now it is time to come down, back to the clinic and something new: Neuropsychology.
Mont Ventoux is somewhere that has always pointed me in new directions. In 2016 it was resistance. In 2026 it marks keeping my world open.
Mont Ventoux: Marking the Way
I was going to leave the blog alone this weekend but was having a look at Instagram this morning just to see what was going on. And I saw something that has, for once, made me so angry that I…
Looking for balance on World MS Day. Between the good days and the bad. Thirteen years in, I am still looking for it.
It is strangely therapeutic to keep a blog. Sometimes it is just nice. Scribbling about cycling, about painting, about reading. There are also things that are not that nice to write about. Still it is important to do it. I…
Multiple Sclerosis is an inescapable part of life, in this blog and beyond. So I will live the best life with it.
The danger with keeping a blog, or any form of diary, be it private or public, is the tendency to only write about extreme events. Good or bad. It can make things seem that life is just a set of…
I wrote this yesterday, in hospital for a day for a routine infusion, on my iPhone. It is actually getting easier to type with my thumbs only, sometimes. Still alert then, went downhill after that as Ocrevus (or Ocrelizumab) took…
So… I had a look at my blog (!). For once, from a mobile. It looked difficult to read. So I used WordPress and AI to search for a nice format that was quick and mobile-friendly. Found a nice one,…