Ocrevus: Daring to Hope
Ocrevus will be happening! What was speculation and hope in earlier posts is now planned, set in stone, in the diary! Exciting! If you find infusions exciting which, for once, I do. The first two infusions will take place on…
Category Living With Multiple Sclerosis
My personal reflections on Multiple Sclerosis. Good days and bad days, preferably the former.
One sclerosis can never be enough, after all…..
Results Day or: Black Hole Time!
That MRI I mentioned happened. It is strange to say now but, well, I had a feeling about the results. Not a feeling of huge foreboding or fear. Rather one that said to me….. this is not going to be…
Falling Down
It is hard work to be positive all the time no matter how much you want to be. Sometimes things just go wrong and, no matter what, you can feel a little down. Take those unpredictable moments when Multiple Sclerosis…
Back on the Roller Coaster
A blog should reflect what is going on at the moment. At least, I think it should. It should be real as well. So here is a post on another instalment of the roller coaster ride that is life with…
A Moment of Vulnerability
A short post on dealing with feelings of vulnerability caused by MS related issues and why I should not allow them to dominate me.
MS: Has It Actually Changed Me?
I saw an article by another person with MS reflecting on what it had changed in them in the twenty or so years since diagnosis. Quite a lot, of course, although such a span of time leads to change in…
Into 2023: Time for Change
The turning of the year. A natural boundary, a time where many people will take the chance to reflect on what has been and also look forward to what is coming. Well, I do at least. Thats what this post…
Cycling: How Does It Feel?
I mentioned my blog to a colleague recently. She asked what it was about so I told her. MS and bikes. Her response something like ‘Oh no, not more bikes!’ A comment made jokingly but I get where it comes…
MS: Invisible Things
MS, like many diseases, has symptoms that cannot be seen but do have impact. I want to share a bit about the personal impact of these but, before that, I will l make one thing clear from the start; I…
The Return of the Lazy Blogger
When I took this blog too seriously, a long time ago with thoughts of using it as a gateway to a career in wine and food (honestly!), I used to read blogs about blogging. I think I had too much…