MS: Bad Leg Day
It’s Sunday, 11th January, and my right leg has decided it doesn’t really want to cooperate. A bad leg day. These happen sometimes. It is difficult to say something exciting about such days. It is simply a case of making…
Category Living With Multiple Sclerosis
My personal reflections on Multiple Sclerosis. Good days and bad days, preferably the former.
One sclerosis can never be enough, after all…..
Snow and Memories
2026 has started with a blanket of snow in the Netherlands. Quite unlike any I have seen, I think. Not in terms of depth but more persistence. This layer of snow will be staying for a short while. Nothing in…
2026: What and, Hopefully, How
So that was 2025. A small word on 2026. No targets or anything like that. More about how I would like to try to live my life. For this year at least. Less a set of resolutions. More a statement…
2025: The State I Am In
Sometimes it is hard work, dealing with this MS thing. There has been good and bad, that is clear from the reflection pieces I shared in the last month. Today, though, it is just hard. Hard on the mind. So…
Years End: The Good Stuff
Things have changed in 2025, that much is clear. Not always for better. But also not always for worse. Amidst the reflections on what has not gone so well, it is important to remember what has gone well. The last…
Year’s End: The Slow Progression of MS
2025 is coming to a close. A year where the slow progression of my Multiple Sclerosis has started to become more noticeable, both physically and cognitively. I am actually very glad that progression has been slow over the last twelve…
Learning to Love a Stick
I need to be honest. I mention acceptance quite a lot, but am I good at it? No, I am pretty crap actually. People tell me it is resilience but it is not. It is stubborn pig-headedness. It can be…
MS: That Darkness We Don’t (But Should) Talk About
I actually wrote this a few weeks ago and left it. I then found it whilst on holiday which is certainly not a period of darkness! But rereading it reminded me of where all this came from and also how…
MS: Reflecting on THAT Day
I have been writing about that big day. August 23rd, 2013. The day that I got the preliminary diagnosis for Multiple Sclerosis. Not an easy day. I found myself reflecting on it at various points over the last couple of…
Celebration Day!
I was not going to say anything more about today, 23rd August 2025. The twelfth anniversary of my (initial) diagnosis with Multiple Sclerosis. But it really has turned out to be a Celebration Day! I will explain why, hopefully showing…