The Isolation of Others
I am a member of various Multiple Sclerosis associations, some of which have on-line forums where people with MS post about their experiences. It certainly brings you back to earth. As a new member of one of these forums I…
Tag Fear
Numb
New experiences, new symptoms, are a constant with Multiple Sclerosis. Sometimes they are only inconvenient, other times they can be a big concern. Mostly, they are somewhere between the two. I will occasionally post about them here. Keep them in…
Ocrevus: Daring to Hope
Ocrevus will be happening! What was speculation and hope in earlier posts is now planned, set in stone, in the diary! Exciting! If you find infusions exciting which, for once, I do. The first two infusions will take place on…
Back on the Roller Coaster
A blog should reflect what is going on at the moment. At least, I think it should. It should be real as well. So here is a post on another instalment of the roller coaster ride that is life with…
The Return of the Lazy Blogger
When I took this blog too seriously, a long time ago with thoughts of using it as a gateway to a career in wine and food (honestly!), I used to read blogs about blogging. I think I had too much…
MS: Time For A Rest
MS progression has, for me, reached a new phase. I need to learn how to deal with that. Time for a rest... Not always easy... #MS #MSLife
All is Change
Been off the blog for a while. A time of a lot of change. I have taken comfort in the trivial through all of this. And I am reminded of how lucky I am. #cycling #MS
MS and the Ability to Surprise
Being open about MS leads to surprise and (good) questions. These give a chance to explain (my) MS. They also show how the on-line world can help. #MS
2019: Closing the Door
As 2019 closes it's natural to look back. Hence a post looking back on a year of learning and fantastic new experiences. #MS #cycling
Five Years
August seems to be a month of anniversaries. Twenty years in Holland, which is nice. And, a couple of days ago, five years since my initial diagnosis with MS. Which is not so nice? To ‘celebrate’, I went for a…